The blizzard hit Amarillo on Sunday, just as Brad got out to work. He got stuck out there and had to work 43 straight hours. That was not fun for either of us. When I woke up Monday morning, the first thing I did was go to the back door to see if I would be able to let Isabella out to potty. I thought there might be a couple of inches.
More like several feet had drifted in our courtyard. I tried to shove the door open but couldn't. Thankfully, Brad had planned ahead and didn't want me to have to walk through the snow to the garage to get the shovel if I needed it and had brought it in for me before he left the day before.
I shoveled a little area out the front door for Isabella to get out to potty. Poor little thing was so demoralized.
By late that afternoon the winds had died down and I thought that Brad might get to come home the next morning (I was wrong), and I devised a plan to get him in. As it was, he would have no way to get into the house because the door was blocked and I had the shovel inside. So I opened a window and crawled out...much to my boy's delight. I shoveled enough to get the door open and y'all...shoveling is HARD work. I didn't care for it one bit. But it did cure some cabin fever and made a way for two little boys to escape to what was an irresistible winter wonderland.
They had to work to get up on the snow.
Especially my little Jude.
The snow was still soft and fluffy and Jude went out too far and started to sink. He was waist deep and still sinking by the time I got out to him. I got freaked out after that and made them come in. I read on the news that they call this kind of blizzard a "cattle killer" because the cattle sinks in it and smothers to death because they can't get out. Bummer.
43 long hours later Brad was able to make it home. We were so thankful to see him. He took the kids out to play in the snow some more. Even Isabella got in on the fun.
Jude got some more shoveling done while James played.
All my boys. We were so glad to have Brad back and be all together again. Even though it was just a couple of days it felt like a lot longer since we were trapped inside and since he was unable to get to us.
I am so glad the snow is melting off quickly. Hopefully it will be gone in time for our move!
Our prayer is that the upper GI gives us some more information on how bad things are and that we are able to quickly get into a GI specialist in Dallas to work out a plan of action to get this under control for my girl.
Still, with as much pain as she is in, she is as sweet as ever. She has been a tiny bit fussy with the 3rd medicine we tried (Reglan) but still, she is mostly content and precious. What a sweet disposition the Lord gave this little one.
That is one unhappy boy. He takes his Nana time very seriously. Thankfully he has been able to spend some much needed time with Nana and Papa this week with lots more to come. Today he made a snowman with Nana and had a snowball fight with Papa.
And the other day I was sitting on the couch feeding Katy Jane and looked over to see that he had put her bow on his head. I thought it was hilarious. Brad was not amused at all.
Silly boy!
Thank you for continuing to pray along with us for Katy Jane as we work to figure out a solution to this problem. We know that the Lord has all of this well in hand and trust that all of these difficult circumstances will be used for our good and His glory.
43 long hours later Brad was able to make it home. We were so thankful to see him. He took the kids out to play in the snow some more. Even Isabella got in on the fun.
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Katy Jane will be having an upper GI on Monday and then we will be taking her to Dallas to see a pediatric GI specialist. I am hoping we are able to coordinate her visit with the specialist at the same time we are there for Jude's visit with his oncologist.
We are thinking that she has Sandifer's Syndrome. Basically it is just severe reflux with all of the strange posturings that are pretty much always misdiagnosed as seizures because that is exactly what they look like. We have her on 3 different medications that aren't seeming to help as much as I would hope. We took her off the 3rd today as she is having some unpleasant side effects from it. We will see what the upper GI says on Monday and go from there. This is really a good diagnosis although it is rare. I am just so grateful that it doesn't seem neurological at this point.
Sandifer's Syndrome is GERD associated with neurological features. There is nodding or shaking of the head, back arching, torticollis, gurgling, writhing movements, rotations of the hands and feet, jerking, neck extension, and an apparent altered mental state. The way I understand it is that it is her brains way of telling her body how to cope with the pain. It is heartbreaking and exhausting to watch her go through these episodes several times a day, lasting several minutes each time. It is even more frustrating that the medicines haven't relieved her of this yet. I am trying to be patient but it is so hard when I know she is in pain.
Still, with as much pain as she is in, she is as sweet as ever. She has been a tiny bit fussy with the 3rd medicine we tried (Reglan) but still, she is mostly content and precious. What a sweet disposition the Lord gave this little one.
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This picture of James made me laugh. Sunday we were supposed to go to Nana and Papa's for lunch but had a change of plans. When I told James we weren't going, he whipped off his beanie and gave me this look.
Thank you for continuing to pray along with us for Katy Jane as we work to figure out a solution to this problem. We know that the Lord has all of this well in hand and trust that all of these difficult circumstances will be used for our good and His glory.
Romans 8:28- And we know that for those who love God all things work together for good, for those who are called according to His purpose.
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